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Rank: Advanced Member  Groups: Registered
Joined: 12/6/2009 Posts: 177
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hi Everyone Been in hospital for 16 days with liver failure after collasping at home i was taken by ambulance to hospital.
We were due to go on holiday the following morning so i was left in hospital!!
Found out it was due to RA drugs, probably the leflonomide which i started a few weeks earlier. ALT went up to 265 so it was quite painful and i had also sickness and nausea most of the time. I had a steroid jab just before i left hospital so i'm having to manage on that and pain killers only for at least a month until ALT is back to normal (still at 171) at the moment.
Love Shirley x
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 288 Location: LUTON
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Oh dear you poor thing Shirley, i am sorry to hear that, It must have been a fright, i hope your feeling better very soon.
Will you be able to have a late holiday when you are able? i am sure it would do you good.
Anne- m xx
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Rank: Advanced Member
Groups: Registered
Joined: 12/4/2009 Posts: 2,127 Location: Thornton Cleveleys
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Hi Shirley So sorry to hear that you have been so unwell and missed your holiday to boot. I suppose the only good thing to come out of it was that you were taken ill before setting off on your holiday where it might have been more difficult to obtain the necessary treatment. Thank goodness the physicians acted quickly and were able to establish the reason for the liver failure. That's one road you won't be travelling down again. Hope the RA isn't too painful and the liver function returns to normal very quickly. Guess it will be a reassessment of drugs once things settle down. Fingers crossed you are soon started on something suitable for you. Take care Lyn x
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Rank: Advanced Member  Groups: Registered
Joined: 12/7/2009 Posts: 262
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So sorry to read this Shirley. Hope your ALT returns to normal quickly and you're feeling better very soon.
Diane x
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Rank: Advanced Member  Groups: Registered
Joined: 3/8/2010 Posts: 914
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Hi Shirley, Sorry to hear you have been ill in hospital, and missing your holiday too what a shame. Hope you get things sorted out soon. Thinking about you take care. Lorna
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 3,157 Location: Huddersfield
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Sorry to hear you've been ill Shirley. Will you get the money back from your holiday? Hope your ALT goes back to normal soon.
Love, Doreen xx
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Rank: Advanced Member
Groups: Registered
Joined: 3/4/2010 Posts: 576
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Hope you are feeling better Shirley. Sorry you have been so poorly. Hope you get back to normal very soon and can resume your meds. XX Ailsa
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Rank: Advanced Member  Groups: Registered
Joined: 12/4/2009 Posts: 1,524 Location: W. Yorkshire
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Oh Shirley, that sounds horrible and scary too! Poor you. YES I'VE CHANGED, PAIN DOES THAT TO PEOPLE.
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,110 Location: London
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Shirley, so sorry to hear that. Your holiday cancelled too. What an awful time for you and your family. I hope the meds can be sorted soon, and that you can cope with the steroid jab and pain killers until then, lots of love and hugs x x x BARBARA
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,689 Location: Durham
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So very sorry to hear this, Shirley, and what a shame you missed your holiday. I had to stop leflunomide after liver problems too. Hope you feel better soon, Kathleen x
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Rank: Advanced Member
Groups: Registered
Joined: 12/7/2009 Posts: 176
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What a shock for you! Do I understand that some of the family went without you? Leflonomide is the next one the RA Nurse wants to add into my existing triple therapy. Hmmmmm! I hope the Steroid Jab is doing the business for you.
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,081
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Wow Shirley, how scary. Glad you got to the hospital before your hols though. I hope the steroid is working and you can get some advice on longer term treatment for the RA.
Juliex
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Rank: Advanced Member  Groups: Registered
Joined: 2/18/2010 Posts: 1,098 Location: farningham kent
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Hi Shirley
Sorry to hear you have had such a difficult time recently, hope you are now getting a little better now and get sorted out for the right meds.
Hope you are able to get away for a break at some point, always helps with the recovery !
Take care, Julia x
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Rank: Advanced Member  Groups: Registered
Joined: 12/4/2009 Posts: 312
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Dear Shirley, I am so sorry to hear that you had to miss your holiday. Sending you wishes for a speedy return to normal Liver function. (I had to have a scan done of my Liver last week, because enzymes slightly elevated, but it looked healthy - so probably the Plaquenil I take for R.A. Best wishes to you, Fiona
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Rank: Advanced Member  Groups: Registered
Joined: 12/6/2009 Posts: 177
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Hi Everyone
Thank-you for all the replies. This forum really makes you feel understood and it's so nice how everyone cares about everyone else. We are all in this RA thing together so it's nice.
Most of my family did go on holiday and leave me in hospital which made me feel very sad and added to the pain. They hoped i might join them after a few days but at the time they went the docs didn't know what was wrong with me so i felt a bit dumped!! Fortunately my oldest daughter was around and looked after me and i had some good friends drop in at visiting time.
I have to go back to see the liver consultant in about a months time so i'm staying put at the moment.
Love Shirley xx
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Rank: Advanced Member  Groups: Registered
Joined: 4/20/2010 Posts: 1,749 Location: Somerset
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Hello Shirley Poor you to miss out on your holiday and also being so poorly. So sorry things not good for you at the moment and I am sure you did feel dumped. Hope steriod works quickly. Rose
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Rank: Advanced Member
Groups: Registered
Joined: 12/3/2009 Posts: 854
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Hi Shirley. Gosh what luck that you were not in a foreign country with this happening. I am so sorry that it has happened to you and that you have missed your holiday. You deserve another as soon as you are well.
Eleanor x
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Rank: Advanced Member
Groups: Registered
Joined: 2/26/2010 Posts: 271 Location: hampshire
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Hi shirley, just caught this thread, you poor thing! Really hope things settle down and you can have some sort of break.
thinking of you,
Heatherxxx
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,582 Location: Oxfordshire
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Oh how frightening!
I am so pleased you are safe....take good care and don't go back on that med!
Love,
Amanda
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Rank: Advanced Member  Groups: Registered
Joined: 5/26/2010 Posts: 128 Location: Birmingham
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Oh my life. You must have been terrified.
I hope you start to heal soon. As if you haven't enoguh to worry about.
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